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4dn:phase1:partner_consortiums_new
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Partner Consortiums (new)
International Human Epigenome Consortium (IHEC)
As you may remember, the Bioethics WG developed a survey for an international study about the opportunities, challenges, and ethical issues in the field of epigenetics.
They are hoping to hear from nearly 300 researchers around the world.
If you have not already filled out the survey, we would like to ask you to please do so now.
SURVEY LINK:https://www.surveymonkey.com/r/M5RZ9T3
The survey takes approximately 10 minutes to complete and consists of 20 questions.
The study is being conducted by researchers at The Centre of Genomics and Policy at McGill University in Montreal, Canada. It has been reviewed by and received ethics clearance through The Faculty of Medicine Institutional Review Board. If you have any questions or concerns, you are welcome to contact:
Charles Dupras, Ph.D, Study Coordinator, charles.dupras2@mcgill.ca, +1 514 398 8244
Yann Joly, Ph.D, Principal Investigator, yann.joly@mcgill.ca, +1 514 398 7286.
September 2, 2020 - Bioethics
- Agenda
- 1. Adoption of Minutes from August Meeting (All)
2. COVID-19 situation (Yann)
3. Survey on Challenges in Epigenetics (Charles)
4. Bioethics workgroup updating membership (Yann)
5. Brainstorming: New projects for the workgroup (All)
6. Ethics Watch (Charles) – Rey, O., Eizaguirre, C., Angers, B., Baltazar‐Soares, M., Sagonas, K., Prunier, J. G., & Blanchet, S. (2020). Linking epigenetics and biological conservation: Towards a conservation epigenetics perspective. Functional Ecology, 34(2), 414-427.
September 1, 2020 - Assay Standards and Ecosystems
August 24, 2020 - ISSC (CANCELLED)
August 5, 2020 - Bioethics
- Agenda:
- Adoption of Minutes from June Meeting (All)
- COVID-19 situation (Yann)
- Media Paper (Stephanie)
- Survey on Challenges in Epigenetics (Charles)
- Vulnerability Paper (Katie)
- Change in group coordination (Katie)
- Ethics Watch (Katie) – Gone and Kirmayer - Advancing Indigenous Mental Health: Ethical, conceptual and methodological challenges - 2020
June 22, 2020 - ISSC
June 3, 2020 - Bioethics
- Agenda
- Adoption of Minutes from April Meeting (All)
- COVID-19 situation (Yann)
- Media Paper (Stephanie)
- Survey on Challenges in Epigenetics (Charles)
- Vulnerability Paper (Katie)
- Bioethics workgroup updating membership (Katie)
- Ethics Watch (Katie) – Dubois and Gauspare, From cellular memory to the memory of trauma: Social epigenetics and its public circulation (2020)
- Meeting minutes (May 6)
June 2, 2020 - Ecosystems and Assay Standards
May 6, 2020 - Bioethics
- Agenda
- Adoption of Minutes from April Meeting (All)
- COVID-19 situation (Yann)
- Media Paper (Stephanie)
- Survey on Challenges in Epigenetics (Charles)
- Vulnerability Paper (Katie)
- Ethics Watch (Katie) – Bunnik et al., “Ethical Issues in Research and Development of Epigenome-Wide Technologies” (2020)
- Buniker et. al PDF (Ethical Issues in Research and Development)
May 5, 2020 - Ecosystems and Assay Standards
April 27, 2020 - ISSC
April 7, 2020 - Ecosystems and Assay Standards
April 1, 2020 - Bioethics
- Agenda
1. Adoption of Minutes from March Meeting (All)
2. COVID-19 situation (Yann)
3. Integrative Analysis Request from ISSC (Yann)
4. Bioethics Group Engagement (All)
5. Media Paper (Stephanie)
6. Survey on Challenges in Epigenetics (Charles)
7. Vulnerability Paper (Katie)
8. Ethics Watch (Katie) – Wolf-Meyer, “Multibiologism: An anthropological and bioethical framework for moving beyond medicalization” (2020)
- Minutes (March meeting)
March 23, 2020 - ISSC
March 4, 2020 - Bioethics
March 3, 2020 - Assay Standards & Ecosystems
February 24, 2020 - ISSC
February 13, 2020 - IHEC ANNUAL MEETING
- We are very pleased to let you know that the IHEC Annual Meeting 2020 & Science Days will take place in Kiel, Germany from 23 to 25 September 2020. This year's meeting will be hosted by the European Union’s Horizon 2020 project SYSCID led by Philip Rosenstiel, which joined IHEC in 2017. Please mark your calendars and save the dates. Further details and the official invitation will follow in the upcoming weeks
February 5, 2020 - Bioethics
February 4, 2020 - Ecosystems & Assay Standards
January 27, 2020 - ISSC
- Associate membership application (Dr. Losso)
January 8, 2020 - Bioethics
January 7, 2020 - Ecosystems & Assay Standards
November 6, 2019 - Bioethics
November 5, 2019 - Ecosystems & Assay Standards
October 28, 2019 - ISSC
October 1, 2019 - Assay Standards & Ecosystems
October 2, 2019 - Bioethics
September 23, 2019 - ISSC
September 4, 2019 - Bioethics
Septemnber 3, 2019 - Assay Standards & Ecosystems
August 26, 2019 - ISSC
July 22, 2019 - ISSC
July 3, 2019 - Bioethics
July 2, 2019 - Ecosystems + Assay Standards
June 4, 2019 - Ecosystems + Assay Standards
May 31, 2019 - ISSC
May 8, 2019 - Bioethics Committee
May 7, 2019 - Ecosystems + Assay Standards
April 3, 2019 - Bioetchics
April 2, 2019 - Assay Standards
March 5, 2019 - Bioethics
- Agenda
- Vulnerability Subcommittee (Katie)
- Return of Results Update (Stephanie)
- Data Harmonization Paper (Katie)
- Media Review Update (Stephanie)
- Epigenetic ELSI Review (Charles)
- Keystone Symposia- Epigenetics and Human Disease (Charles)
- Ethics Watch (Katie)
- See attached article – Alblas et al, Autonomy Challenges in Epigenetic Risk-Stratified Cancer Screening
- Varia
March 3, 2019
February 25, 2019 - ISSC
January 28, 2019 - ISSC
January 9, 2019 - Bioethics Meeting
January 8, 2019 - Assay Standards & Ecosystems WG meeting
December 4, 2018 - Assay Standards & Ecosystems WG meeting
November 28, 2018 - Bioethics meeting
November 26, 2018 - Comm meeting
November 26, 2018 - ISSC meeting
October 23, 2018 - IHEC Meeting Hong Kong: Slides Comm WG Session
October 10, 2018 - Bioethics meeting
September 25, 2018 - Please find the minutes from today’s meeting, as well as the Integrative Analysis slides from Guillaume, attached. Please note that this was the last call that will be on this line, as NIH is no longer supporting IHEC after this month. It has been a pleasure working with all of you, and I hope our paths cross in the future!
September 24, 2018 - Some slides on data download for discussion as part of the integrative analysis working group update.
September 17, 2018 - Reminder IHEC Meeting 2018 & Science Days in Hong Kong
- The IHEC Meeting 2018 & Science Days in Hong Kong are approaching quickly.
- Therefore, we would like to kindly remind you, that the deadline for the submission of abstracts for the IHEC Science Days (27-28 October 2018) has been extended to 26 September 2018.
- You may find all further information on the meeting website: http://ias.ust.hk/events/2018ihec/registration.html.
- Registration for the IHEC Science Days will remain open until 15 October 2018.
- Should you have any questions, please get in touch with the team of the IHEC Secretariat in Hong Kong directly:
- Email: ihec2018@ust.hk
- Tel: +852 2358 5963 / +852 2358 8180
September 5, 2018 - Assay Standards meeting:
September 5, 2018 - Ecosystem meeting:
September 5, 2018 - Bioethics Meeting agenda and attachments:
August 28, 2018 - Meeting notes from ISSC meeting:
- Reminder:
- Please make sure that others in your network are aware that the abstract submission deadline has been extended to *September 26th*. Additionally, please encourage people who are interested in attending the meeting to register and submit abstracts.
July 25, 2018 - Update from Ecosystem and Integrative Analysis WG:
- The recent discussions in the IHEC Integrative Analysis and Ecosystem working groups on metadata validation. As a reminder, at the last IHEC Annual Meeting in Berlin, all groups committed to fix their datasets metadata submitted at EGA, to follow IHEC standards.The metadata specifications document is available here: https://github.com/IHEC/ihec-metadata/blob/master/specs/Ihec_metadata_specification.md. As displayed in the EpiRR validation report, datasets produced by the AMED-CREST consortium currently has some invalid metadata, as follow:
- 324 non-validating samples
- 0 non-validating experiments
- As a reminder, only datasets passing validation will be included in the epiMAP integrative analysis project. Therefore, it'd be appreciated if you could revisit your metadata by August 13th 2018, following these steps:
- Download the IHEC XML validator (https://github.com/IHEC/ihec-ecosystems/tree/master/version_metadata), to run on XML documents you submitted at EGA. Use the -sample option to validate samples, and the -experiment option to validate experiments.
- Fix metadata where needed
- Contact EGA support to mention that a metadata update is requested
- Update corrected XMLs to the EGA using the “update” mode
- Contact EpiRR to indicate that datasets metadata has been updated, and resubmit EpiRR JSON documents.
- Do not hesitate to contact the Ecosystem working group if you have any questions along the way (ihec-ecosystem@ebi.ac.uk).
June 26th, 2018 - Update from IA working group:
- Update on meta-data validation: https://docs.google.com/spreadsheets/d/17i_F0VKORwv3Lmzx2WjT1GnZA0DUUYml1gAme9g_g6o/edit#gid=953026673
- Update on data download: https://docs.google.com/spreadsheets/d/1BOXgWNvzKscW2Udeu9V_nhU5i-qXXt6wDW00TjSeLuw/edit#gid=0
June 25th, 2018 - Communications WG minutes:
June 13th, 2018 - Bioethics Meeting notes and attachments:
- Additional paper on Epigenetic Discrimination
June 5th, 2018 - Assay Standards Meeting Agenda and links:
- Roadmap dbGapped read-level data would have to come from dbGap. We do have the metadata and our analysis results for those dbGapped experiments, linked back to the dbGap SRR ID.
For example https://www.encodeproject.org/experiments/ENCSR656PGJ/
https://www.encodeproject.org/search/?type=Experiment&internal_tags=dbGaP&award.project=Roadmap - The small set of protected ENCODE read-level data (specifically the parathyroid adenoma ChIP samples) would have to come from us or the lab. We can work that out separately. If you don't need to remap those, you can just take the redacted alignments from the ENCODE Portal (mapped then scrubbed of sequence data).
For example https://www.encodeproject.org/experiments/ENCSR486GER/
https://www.encodeproject.org/search/?type=Experiment&files.no_file_available=true&internal_tags%21=dbGaP - And yes the fully open read-level data is all on the ENCODE Portal (Roadmap included). We went to some trouble to recurate the Roadmap metadata (also on the ENCODE Portal), and that is all cross-referenced to GEO/SRA as well as the terms used in Roadmap. In the example below see the GEO links to “External Resources” and Roadmap aliases. For that reason I recommend you get your Roadmap data from the ENCODE Portal.
For example https://www.encodeproject.org/experiments/ENCSR426TPQ/
https://www.encodeproject.org/search/?type=Experiment&award.project=Roadmap&internal_tags%21=dbGaP
May 31st, 2018 - IHEC ISSC Meeting Registration link:
- Here is the link to registration for the Hong Kong meeting: http://ias.ust.hk/events/2018ihec/register/member_and_guest.html
May 22nd, 2018 - Bioethics manuscript:
May 3rd, 2018 - Assay Standards meeting Agenda and links:
May 3rd, 2018 - Ecosystems meeting:
April 27th, 2018 - Assay Standards March minutes:
April 27th, 2018 - Bioethics Agenda, minutes, papers:
4dn/phase1/partner_consortiums_new.1599069337.txt.gz · Last modified: 2025/04/22 16:21 (external edit)